Good Gone Girl

July 18th, 2010

BLAH!
Work,family,life,work BLAH!!
I need a holiday I reckon, a long, long holiday somewhere far far away, somewhere warm without wifi or even a laptop in sight.
LDN is working nicely. I have the timing licked so no more scarily early mornings anymore!

Between 9 and 10 am , I then take a nap about an hour later in  order to sleep it off and everything is honky dory!

I took the past few evenings off and really I should not be online tonight but it’s not work related for a change. I just want to recharge the MP3 player and order the August Craft Stamper (which has just been done) and I’m off up to bed to watch Top Gear.

Very boring, very predicable life that I lead but there you go eh?

Can you see what I see?

July 16th, 2010

This is a Sponsored Post written by me on behalf of SeeSaw. All opinions are 100% mine.

We have Sky + and whether is is down to laziness or the small fact that we are totally worn  out after watching the boys all day we usually end up recording our favourite programmes then re-watching them when it is convenient for us.

SeeSaw is an online TV service with has both free and paid for content. The content is from various providers; BBC, Channel 4, Channel 5,  etc

You can watch hundreds of programs which are free (and completely legal) plus you even have the opportunity to rent premium shows from both tthe UK and the US.

My first stop was to check out the Comedy Section and see what they had on offer. 52 episodes of Red Dwarf! Happy days! It’s a shame that they don’t carry Kath & Kim though, myself and the dearest husband were watching that last night. I just crack up at that show- secretly Kel reminds me of you know who, but don’t say it out loud! He would kill me if he heard me even suggest that!

I get to have the telly in the bedroom all to myself tonight though. It is the Biggest Loser (2008) final tonight, I know okay?

I want Sam or Alison to win. I don’t really like KB for some reason but at least Cosi got kicked out already I so cannot stand that guy!

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No bother..

July 15th, 2010

Still plugging away with the LDN. Last night wasn’t too bad to be honest. I awoke at 3am ish again, went down to the toilet (went and was back within two minutes!) then it took me about five minutes to drop off again.

I was tired and wanting to fall asleep ,but the Boeing 747 that was parked next time was having none of it!

For the past few days, the Dearest Husband has had a throat infection , and has started snoring. Lovely, wonderful, what a joy. I am complete insomniac due to the LDN and Rebif , but this episode is seriously not helping matters.

To cap it all off, this morning he rolled over , took a look at me (two hours sleep and unwashed hair) and said ” You look like Sh*t”

No doubt not so darling soon to be ex was up late last night rereading 101 Sweet things to say to your girlfriend.

I got up soon after and made breakfast for the children.

I have taken over the boys care from 7 am till 7pm everyday this week because he is “sick” .

I took the LDN at 11am and to be honest he came down at 12 noon and let me off for two hours, so I managed to sleep off today’s dose. I do think that time frame works for me providing that I do manage to get a rest about an hour later. Tonight will be the killer though, I hope the isomnia clears up soon, I do manage to play catch up in the end but it is very trying to say the least.

Hopefully it will all be worth it in the long run?

Yeah, hopefully

Clear as Mud

July 12th, 2010

I slept from 10.30pmish till 3.20am when the brats decided they needed a pee break and couldn’t decide who would go first.DS2 did as he has sharper elbows than his brother..Fell asleep againwithin about 10 minutes, woke up a 7.30am ish-went for a pee-back to bed.
DS2 playing bricks in the bedroom, DS1 creeping around the kitchen looking for food (ie TREATS) to permanently borrow woke me again at 9.30am, this time I admit defeat and rise for the day.

After breakfast ,at around 11.30am I take the LDN, managed to sleep* for about an hour then get up.

Dinner made etc

4.30pm we all eat Nutella on toast, which was bought for me and me alone because no one else likes it apparently *huffs*

5pm, we get to crafting with paper-plates/paper-cups and a forever friends card set that I bought for myself on Saturday.

One FF card set and two hours later we are still knee deep in paper-plates and cups (of assorted colours) the living room wall is also sporting a very fetching purple/yellow/red/green mural type ‘thing’ which both boys and myself love.

Daddy does not love it.

8.10pm jag with Rebif

Almost 11pm and I’m calling it quits, blogged three times , did four paid postings and played 100,000,000 and 3 games of bejewelled on facebook (still to of leader board with 350,150) Smiles.

Sam Sheep Can’t Sleep

July 11th, 2010

And neither can I..

Rebif brings me back to the world of the living at around 5am the ,the morning after I jag. That I have learned to deal with thus far, I started the LDN on Friday- Did you hear me?

I STARTED THE LDN ON FRIDAY NIGHT!

It is the most amazing thing ever! For the first time in a very longtime, my body feels completely and utterly normal.
My bladder is functioning like a non MS-er, the brain fog?
What brain fog? I could be Stephen Hawkings’ love child!

I can barely believe it. I had heard the tales and well you know , you take  what you read online with a pinch of salt.
My reason for wanting the LDN was for bladder issues. I have serious hesitancy problems and it does get very uncomfortable after straining to pee for a good 20 minutes when you are fit to burst to begin with. And don’t even suggest anything to do with a catheter, that is so not happening here.
But it is all good, so far two days in there is a slight delay-maybe a minute or two – but from where I was last week in the peeing stakes , it is all good!

World Cup Final night ,so I have been told to stay away till after the deed is done.No doubt dear sir is having a blokes night with himself and two bottles of Stella!

I am so looking forward to my bed tonight though, the last night I had a proper nights sleep was Thursday , and gawds am I ready for that puppy tonight?
I will take the LDN in the mornings and it will, apparently, have the same effect during the day. If you feel a strong wind when wandering past Temporal-Confusion that was me running on by

Dimelo?

July 6th, 2010

So what’s been happening of late? Nothing spectacular to report I’m afraid!

Dear Son One is free from school for the next eight weeks!! It doesn’t mean we get a lie-in or anything as nice mind, the boys are awake a around 7.30am and poor muggins mommy is up and at ‘em shortly after!

It does meam that we get breakfast out of the way early enough and have the day to ourselves. Will and I are thinking that maybe tomorrow morning that we go to Toys’r’ US or similar and pick up some new playthings with the left over birthday money.Hopefully they will have some educational toys that are age specific for the boys there. Last time we called in the stock was a little low and the choice wasn’t that great.

No holiday this year , just lots of days out to keep the boys entertained, although saying that for the past two days the weather has been absolutely horrific and has been blowing up something that wouldn’t be out of place mid November!

Anyways I haven’t cleared from the planet or anything like that.It is summer and we have both kids at home, first and foremost they are top priority. We made some cards today for Granny and Grandad- plus a ruddy great mess that daddy moaned loudly at whilst he cleaned it all up!!

Life takes a lot of twists and turns. The best compass to follow is your gut

June 30th, 2010

So I jagged myself tonight.

Carole was adament that I shouldn’t but guess what? She’s not here!

I know a lot of the personal bits that she doesn’t that made me feel a bit down.As the DH said earlier ” You are no worse or even better than you were before” He knows me pre-Rebif, so I trust his judgement over Caroles’

She is a sweet lady and such, a very dear sweet lady but she has only know me a month, so well-she has a lot to learn about me!

The LDN is on it’s way and should be here by Wednesday. Very exciting indeed!

The boy has broken for school holidays!! HURRAH! We are free for nine weeks! *giggles childishly*

Not much else happeniing to be honest ,so I’ll bug off and play on some of my other sites!!

Cold Shower Tuesdays

June 29th, 2010

If I could jump, I’m sure I’d rattle!

At 10 am the phone rang, I answered- actually it missed the first time because I didn’t reach the handset in time. I managed to snatch it the second time though. It rings, I answer  it was Carole my MS nurse ringing to check in with me.

I told her what was happening and she basically told me I had to stop the Rebif immediately and I needed to go see my GP.

We talked about it for a spell and I agreed to go see my Doctor.

She rang ahead and had a chat with him.  I then managed to get through (have no clue how she managed so fast!) and by 12pm I was sitting in the doctors surgery.

Got there, explained and we both agreed that I was not in any immediate danger of killing myself! For some reason she was convinced that I would hang up the phone then go top myself.. bizarreO

I don’t want to stop the Rebif because other than the small fact that I was thinking about being dead it was all good.

Doc gave me a script for-fluoxetine? I agreed to take them to try and stay on Rebif.

My LDN is on the way, apparentlt this can and will pass.

I am aware of it, My husband is also very much aware of the slight change in my personality. I seem to be obsessing over small issues from time to time, that and I am very quick in being annoyed. I am usually a very slow burn and things have to go on for a decent length of time before I would mention them.

I am not overly concerned at the moment. The usual MS crew have been consulted and they think as long as I keep tabs on it, it will blow over.

I am still gonna jag tomorrow though,Carole wants me to stop and try Copaxone. Not a fucking hells chance! I chose rebif because I don’t like needles- I still don’t!

Don’t think I don’t think about it

June 28th, 2010

The best thing about me is the way my brain works.

It is so funky and messed up that , gah, it is just that funky.

So no Rebif side effects eh ? Nah not me!!

Didn’t get any of the flu like symptoms, I didn’t get any site reactions either.

I got one better!!

Suicide Ideation.

I was aware of it , yes.

It was discussed with my MS Nurse, that and all the other usual side effects.

BAM!

It came straight-out of left field , that I was not expecting!

You could not make this shit up..

I am seriously fucked up kids..

Important part is that I know what it is, I was aware of the chance of it happening before I started on the Rebif.

what to do though??

Apart from playing with the notion of offing myself , it is all good.

I honestly cannot top myself anyways- DH ‘cooked’ the boys their lunch today..

Sweetcorn and Pasta shapes- together and cooked in the same pot- along with two vegetable fingers he cooked in the oven!

Gods help the waynes! He tried bless him, he did and well, he can clean up a storm. Hoovering, washing general house up keep. He is a master at that, props to the guy there but cooking?

Dear Gods above the boy has no clue..

The boys ate it , but DS1 quietly asked me ” Will you cook dinner tomorrow Mummy?”

Someday soon

June 27th, 2010

Those who suffer Arthritis have been given extra drugs to help them.. I wonder what brought on that change of heart? Anything to do with the new government and showing some kindness in their heart? Na, more like shove them some more drugs and then they can get out to work. The Ms population has already been targeted and hit with the Lib Dems own special brand of kindness, as thousands of MS patients have already been ‘assessesd’ and miraculously cured of their disease and pronounced fit for work.

Hundreds of wheelchair users have been thrown onto ESA and been told that they must find work..Hundreds have appealed and it hasn’t gotten them anywhere.

Just today the government have announced plans to relocate the umemployed to different areas of the country in order to find work..

So what is this all boiling up to? What is the overall plan? Get Britain out of debt. Debt that was not caused by the ordinary worker on the street. We all have to contribute, and pull together. It’s gonna be hard, it’s gonna be tough. Yeah living on £700 PER DAY is going to be very trying Mr ‘ Prime Minister’  I feel your pain.

I have a better idea..

Compulsory Euthanasia.

My bad- it wouldn’t be compulsory it would be voluntary and would be “ providing incentives for people to find peace, rather than compelling them to die

Hands up who thinks that this bunch of knobheads (who we did not vote in) have been watching the Sci-fi channels at bit too much?

Logans Run ? Oh but no, silly me, that would require them to put every over thirty years of age by the simple expediency of killing them, and they wouldn’t be that kind.

They have already unleashed their plans to make every person in the UK work until they drop, whether they are capable or not.. Bad example..?

hmm hows about Gattaca? where During this time society analyzes your DNA and determines where you belong in life- do you deserve to exist in the UK?

Think about it, no disabled- mentally or physically people with disabilities within the UK. Just drones who carry on existing until the day they drop.

No more MS, ME, Autism, Aspergers, Arthritis,[Duchenne]/ Muscular Dystrophy

Ladies and Gentlemen- I think we have a winner!