YEAH

Go ahead and live your life as an MS sufferer for just one day,and you would soon enough change your prospective.

The UK Governments official response to MS patients requesting that the procedure being available in the United Kingdom.

The Government is aware of Dr Paolo Zamboni’s findings.  However, as this is the only piece of research on the link between CCSVI and MS that is currently available, it is important to approach such findings with caution until a further review of the research has been conducted.

A number of medical advisers to the MS Society have read the papers published by Dr Zamboni, and have heard him lecture on the subject.  The advisers have provided the following statement about the alleged link between MS and CCSVI:

We are not convinced by the evidence that blockages to draining veins from the brain are specific to people with multiple sclerosis, or that this explains the cause of multiple sclerosis at any stage of the condition.

We are all agreed that people with multiple sclerosis are not likely to benefit by treatments that dilate blood vessels and consider these procedures to carry risks with no evidence for benefit.

The treatment for CCSVI is not available for patients with multiple sclerosis in the United Kingdom because there is no convincing evidence to suggest that it is safe or beneficial to people with MS.

The Government is determined to make the UK the best place in the world for health research, development and innovation and to invest its substantial health research budget in the best possible way.

The Government’s research strategy ‘Best Research for Best Health’ is resulting in an expansion of the Department’s research programmes and in significant new funding opportunities for health research.  The National Institute for Health Research programmes support high quality research of relevance and in areas of high priority to patients and the NHS.

Possibly, maybe Okay I Am!

I’ve joined a social group on UKS for Compulsive Buyers  and well, if you have read this blog for a page or two then you know that it does indeed apply to me.I have agreed not spend any money on Stash for a full month.. WHAT HAVE I DONE?!!

No, I have to at least try, the spending  has escalated  way out of control and it has to stop. Strangely enough, I do not seem to be alone in my compulsions. Which is a small relief. So no more entries that list my shameful secrets. So thats no more trawling the sponsors in UKs nor the Market Places on any or the craft forums that I frequent and definitely no more eBay!

Dear Lord, I have the shakes already! Actually I have been really good and have not bought anything since last Thursday (some inspire me papers from Cutting Edge Crafts) so that in itself is a minor accomplishment right there!

Stage Two is to make more with my available stash, which actually might be a little harder than the Stash abstinence thing. I best start trawling the net for some inspiraion..

Gawds me eh?

Now cards to show because the camera battery is dead and lo and behold I cannot find the charger.Second to that , is that I haven’t actually made anything.

Easter holidays started today and I probably will not get the chance to do much this week either.

Not much else happening otherwise. The boys are heading to get their swine jabs tomorrow morning and right now I’m heading off watch a movie!!

I wasn’t concerned before.. It was a nice added bonus and something that made MS worthwhile in my opinion! I’ve had the crap sides ,and I’m all up to date in that respect.. I watched my cousin, who also has MS, lose around 8 stone and I was like ” cool,why can’t that happen to me!” I have always been curvy, always and it has honestly never bothered me.

I know overweight people always say that, but honestly and truthfully, it never bothered me in the slightest! I was content in my own skin .

Last June I started losing weight, I was going through horrendous relapses so I did not take any notice- I did have other things to worry about at the time. So by September I had lost five stone, I don’t know how exactly and I don’t remember ever even giving it a second thought. It just ‘happened’ I honestly have no ways or words to describe it, it did ‘ Just Happen’. I hadn’t left the house in about three weeks and then the day I did , I met a neighbour and she was ” Oh My God! look at you!”  I think it was then that I realised what exactly had happened.

We were heading to Dunelm Mill and we took the elevator tp to the household department. I didn’t recognise myself, and I certainly did not like what I saw looking back me.

I weighed myself today, something that I haven’t done in about four months? As of today I am nine stone three pounds. I think I want to cry actually. It’s not me, I don’t know who she is exactly but it isn’t me. I am me on the inside- I still ‘feel’ like me but on the outside? That isn’t me.

I lost my butt, my thighs, my boobs- My sticky out bits that a female is supposed to have.. A size UK 10 is hanging off me at the moment. I honestly never though that being ‘ one of the skinnies’ would be so horrible.

For the first timein my life- I hate myself.

I’m fed up getting spam emails advertising Viagra and invites to apply for a new Credit Card. Contrary to popular belief I am not male so therefore do not have any issues of that variety-thank you. I do have a credit card with a very healthy credit limit, the balance worries me somewhat but if I knuckled down and stopped spending money on craft stash, I could have the thing wiped in about four months.

Speaking of money, according to some online dating statistics the average ‘date’ in the UK costs £200 with men spend almost ten times as much buying drinks and meals for potential partners than women. However women match the amount spent dating, as a result of the cash they invest in pre-date preparation.Desperate much eh?

I’m being harsh I think! Okay I met my beloved on a HND course many,many moons ago and honestly we were just friends to begin with. A lot of folk claim that a female cannot have platonic friendships but for me anyway that is true! I was on a computing course with 26 males and me, so I can tell ya it does happen! Yes, they were all geeks or geeks in training so dippy Dave was ranked in there too! He was a dip to be fair , but within four months he had won me over and less than three months after that we got hitched! That was oohh ten-eleven years ago now? It is still working so  don’t need to get involved with the dating scene just yet methinks!

I went on a serious-serious spending spree last night-why? I have no clue.

It started with a Milton stamp and paper pad. The Alissa paper range from Bo Bunny.Creative Card Making Summer edition and three Tom Holtz distress Inks.Five stamps from Pink Gem designs.

All in all I spent about £50.. Ouch? I was bad.very Bad.That isn’t counting the £66 that I spent from Thursday to Monday..Yikes.

I need to get making with all this new stash.Good news is that the cold is gone. My mobility is back to ‘normal’ so  that is one less thing to worry about. Speaking of that, I have been toying with the idea of asking my doctor for a private prescription for LDN (Low Dose Naltrexone) It’s just something that I think I could benefit from. I also want to ask him about B12 injections.

I start the Rebif in May but I honestly believe that it is just a little too late in game for me. Maybe I’m wrong, maybe I’m just getting irked about all these’ miracle’ stories regarding Tysabri and CSSVI ?

I need to stop reading these forums is what I need to be doing. For the past ten years I have been playing my own game as far as the MS goes and to be honest I’ve been drug free and doing fine.

Hmm..Anyway- hot water bottle and bed. Yeah I’m old-get over it!

I have a bad cold, I’ve had since uh, Sunday? except today I woke up and could not get out of bed. I just could not manage to physically move my body. The DH had to get up and make the boys breakfast. I did manage to hobble down to the living room a little later and help DS1 to dress for school. I then somehow managed to dress the extremely wiggly DS2 and myself. We then attempted Tescos.

My left leg still wasn’t playing ball at that stage,so I took a scooter around Tescos to do my shop! I so want one of those, they are wicked fun!! The boys think so to, but anyway we got the shop completed without any major disasters and headed home.

I made DS2 and the DH another breakfast (just beans on toast & tea ) then headed to bed. I fell asleep more or less straight away but the DH woke me at about 12.30pm with a package had arrived for me. It took me a while to realise that it was my Oval Nesties from the USA- I thought day ten was Saturday, today was only day six but who cares! I wish I was feeling better, I’ve received so many delightful toys this past two weeks and I haven’t been able to play with anything yet!!

I think I should go off to bed again, not that I need to sleep or anything ,after the past two days..

Not much has changed with regards to the craft/games room situation unfortunately,I’m more than a little frustrated about it but it will be resolved soon enough no doubt.

Between yesterday evening and this afternoon I bought myself a set of oval/scalloped ovals last night and six Tim Holtz distress inks ! Both have been dispatched already,so happy days! I haven’t messed with Distress Inks to date but after reading the Craft Stamper for the past six month or so I have been gently pursaded to do so. The Inks are from Cutting Edge Crafts are a very silly £3.99 each-so what could I do?

Quixotic Paperie have a few new CC Design stamp designs that I do want but they will have to wait for a spell-same goes for the new Basic Grey paper that is just out.

I am bored silly to be perfectly honest, I keep walking in here (the craft room) and feel like bursting into tears. It is so not fair!!

So a copy of  Magnolia Ink went for £21 o eBay the other night. The world has gone insane! I have a read once copy sitting in my craftroom at the moment..I offered it to a person for the same price but she wanted me to go down to £15 because that was her maximum on eBay.. No I don’t think so, I like you and all that but I will take my chances elsewhere!

My craftroom is undergoing serious modification so I have been turfed out into the Kitchen. The DH is on a major spring clean/redecoration kick at the moment. He bought a new two seater (choclate coloured) leather settee , two new sideboards and a kitchen snug for the kitchen. He also repainted to living room,so instead of one orange wall, we now have three orange walls and one white!

I am getting rid of my PC Desk in the craft/games room and I am taking the smaller wooden table that came with the snug set. It will give me a lot more room to play with. I have to pick up another storage rack tomorrow to house the excess craft stash boxes.

Not much crafting going on due to the upheaval but just a shot of the last card I made- The Rosalie stamp from CC Designs..