Busy day today with the phone lines in Temporal HQ.. Ring, Ring, Ring no doubt that’s our lot for the next six months..

My MS nurse called first thing to confirm ‘ my choice ‘ of DMT- Rebif with the Rebismart .  I didn’t bother to mention the small fact that I will be starting LDN instead. She isn’t the type of woman you want to argue with, shes’ annoying and very long winded once she gets going. She’s an older bird who thinks that she knows all and everything about MS, I don’t have the patience to deal with her so I adopt a nod your head and agree approach, it saves time and energy-sorry stupid people annoy me and it will probably get to the stage that I am deliberately provoking her with choice remarks. Someone once  told me that 90% of people are stupid and should be treated as such so I do! Winding people up with remarks that are guaranteed to spark a fit is a speciality of mine. It is incredibly childish and pathetically sad I know , but damn it is soo much fun! I am one of those rare breeds that you can actually say ” You don’t get out much do you?” and it is true!!

I also got a call from the Open University.. everyone make the appropriate noises please..

I emailed them last week to enquire about restarting my studies after last years Health issues.And after a very nice ,long phone call the answer is yes, but this time she wants to set up some sort of support network to help me along. Last year the major issue that caused me to drop out with studying at OU was the sight, the extended bout of Optic Neuritis that I had to endure. I don’t know exactly what type of support they intend to offer me but she seems to think that I would benefit from it. Good call really, I have never told the OU that I have MS so -Oh I don’t know really. I rattle on about it here at TC but I rarely, if ever, inform official parties of my disability as in most cases it does not interfere.

I also got an email from a former client of mine asking me to redesign/update a website of his. Back before I decided to have babies I was self employed as a web designer. I was surprisingly very successful at it and ended up with more that a handful of clients on my books.When DS1 was born my priorities changed somewhat, and basically  my son was growing up behind my back, so I decided to sell up and move on. The ‘company’ name ie reputation and client books went for a tidy six figure sum.

Give me a PC and an internet connection and I will make money- and not a webcam insight!

Speaking of work, I do have three Paid bloggings to do by tomorrow ,so sod off for the time being.

I’m feeling that my journey on the MS meds cycle should begin with LDN. I have never been truly comfortable with the whole CRAB (Copaxone, Rebif, Avonex and Beta Interferon) thing if I am to be perfectly honest. I’m not one to throw drugs down my throat for any other minor (non MS) related illness to begin with ,so it does fit in with my own thoughts regarding the subject.

I don’t know if any of the CRABS would work for me anyhow, I have no real explanation it is just a hunch! And I have seen my cousin start on the Interferon’s about five years ago and she is now paralyzed from the waist down, wheelchair, bedridden, carers the works. Yes MS is progressive and it does effect ever MS’er differently and all that garbage but I don’t know ? It just doesn’t sit with me at all.

The only thing that my cousin and I share is the fact that we both have Multiple Sclerosis. I have a different mindset to her in every way. She is what I would call a ‘squealer’ she would moan about everything and everyone then maintain that because she had MS she was ‘special’.. Yeah okay.

People expect you to behave in a certain manner when you mention that you have MS. Like it automatically makes you a wheelchair user. I’m sorry that I don’t fit the mould ya know. Yes, I do have it, no I am not faking it ( I have three MRI scans and a Lumbar Puncture to prove it) I am not one for sprouting all the positives about the disease -MS sucks. Big time. You suck it up and get on with it. I work full time (online) I’m not a benefit fraud, I am not currently in receipt of any, Yes I get working DLA because of the daily issues that I have because of the MS.

MS is not only an illness that effects mobility, it is a lot more than that- go and google it- have fun!

I like my life,sorry. I am married to a wonderful man whom I still adore nearly 11 years later two incredible boys that I am so fortunate to have and we live in a tidy not so little bungalow (that we own). We are happy more-so I am happy with my lot. It does suck to know what maybe in store for down the line, but I don’t and won’t dwell on it. The ‘worst’ might happen then again, it might not..

I have MS..tough. You do not have MS but you are still an idiot, at least I have a viable excuse

I’m bored..I should maybe get a bit of crafting done but I couldn’t be bothered.

I would like to read but everything in my TBR list is Crime Thrillers and such and I’m really in the mood for some sci/fantasy stuff. I do have the Lora Leigh and a Kelley Armstrong (Men of the Other-World) on it’s way but ah I don’t know. I guess I will just hang tight until they arrive. The Kelley Armstrong is just a compilation of Novellas that were available to read on her website but I do want it in paperback.

I think that there is a new Nalini Singh (Psy-Changeling series) but I can’t seem to get my brain to remember the last NS I read..I think it was Visions of Heat? Maybe then again Maybe not.

I also picked up another title by J.R Ward-Covet , it’s about Fallen Angels from what I can gather it should be here in the morning.

I’m getting conflicting information with regards to taking LDN with Rebif. Some say do, some say don’t. I got a call from both my GP and the my Neurologists’ secretary today. My GP rang first to ask me if I got an appointment to see the Neuro yet. “Err no not yet”  I said- ” Will you ring his secretary and see what gives?” says he ” Of course says me.. I hang up and the phone rings- No prizes for guessing. It was the secretary informing me that Dr.D wants me in on Thursday..

Okay, no doubt it is about the MS meds..

Lovely says She..

Is fighting to get back to studying with the OU. I was working towards the  Certificate in Web Applications ,and just before the final assessment the MS got in the way. I was studying TT280 (Web Applications ;design, development and management) at the time and somehow manage to complete and pass the course but I had to set it aside while I got my self together now almost a year later I think I’m getting there.Unfortunately for me, the final registration for the course TT281 was last month so I will have to wait until Feb 2011!
I had a minor splurge last night. Minor in comparison to what I used to do that is. I got my vitamin D3 tabs and a copy of ‘Black Jack’ by Lora Leigh. The SU marker club that I signed up for about two months ago is going ahead in April and for once I am first out of the blocks with regards to the hostess month. I won’t list the entire order but it did (including the first set of markers and postage) come to £80. something pence. I have my regular SU monthly order due in also ,so along with the telephone and broadband bills it has been a expensive month.

DS2 is doing well, he isn’t completely covered with spots ,as was his brother, and seems to be fairing well enough. He was a little down today and spent the day cuddling on my lap and asking me ” Mommy, I don’t feel good-can I have huggle?” oh Baby he really knows how to break my heart that child…

I do have some makes to throw up on the other place so ,that is me for tonight.

I spoke too soon and jinxed poor DS2.. He started erupting this afternoon. We’ve already had two doses of calamine lotion and he seems happy enough. DS1 played the big brother card and told him all about Chicken Pox. It was soo sweet, DS1 told him that they were only sore on your pinky winky but just to tell Mummy,Daddy or him and they would hold your hand when you need to pee!! ah bless!

I won an eBay auction last night- at $9.12 for a set of ‘A light Heart’ from SU , postage was £3 odds so it went for going rate from sellers over here. I need to buy some more D3 vitamin tabs as well,so I may as well just head back over there in a bit.

DS2 took his prized new set of <(Usborne Phonics Readers) books that I bought him to school today to show his teacher and she promptly stole them! She did write me a note in his link book explaining to me that  she would love to read them to the class if I didn’t mind. Great! As long as he gets them back in the same condition as he took them, then I don’t mind at all.
I’m heading up to bedroom to watch tonight episode of ‘V’ with the DH , who is already camped out waiting for me to bring up tea and biccies.  I think he fancies Anna actually! He’s a strange being all together sometimes, at least she is better looking than Lucy Lawless or Ranee O Connor from Xena..

The Black Dagger Brotherhood series that is.. I finished Lover Avenged today,which is book eight in the series.. ahhh but all is not lost! Fear not but book nine, which is titled Lover Mine is released on May 6th..Wehey! I absolutely love that series, J.R Ward, was an awesome find and I honestly totally and utterly enjoyed reading her work. May it long contiue my dear!

DS1 went back to school today. His class started back last Monday but he erupted in a bout of chicken pox almost two weeks ago. I took him into the docs who confirmed that it was and we left with a script for two bottles of calamine lotion and some Calpol.  We did expect that DS2 would also catch it, but for some reason he didn’t..

When I called the secretary to inform the school, all she did was laugh! Apparently DS1 was child nine in a class of 16 to be brought down with Chicken Pox..Hmmm I wonder where DS1 caught it from then? DUH.

I got my LND. My GP really surprised me actually. I went in with a bunch of printouts ,fully versed and my argument already worked out in my head. He read the first print out and said “”hm mm yes okay..” WTF!?

So I left his surgery with a script for LDN.. I am gobsmacked. I thought I would have a fight on my hands to get access to a relatively untrialed drug instead of the much touted traditional DMD route. I have also heard the horror stories of MS patients who have tried and failed to get it prescribed. I already found out from my head chemist from my local pharmacy that ,she could indeed fill my script. It takes four days to ge here on special order from mainland UK and that I am the fifth person to be on with who has MS within the village. I also found out that all prescriptions are free over here- to everyone whether you are employed or not- bonus! I was fully prepared and would have more than happily paid for it myself. So with that in hand, I will start it as soon as it arrives and hopefully I can avoid the dreaded Rebif andcompletely avoid sticking myself three times a week for the next I don’t know how many years!

I have had MS for ten years now and I obviously understand very little about the disease.

For the past eight months or so my right foot/leg has been dead. Dead as in cold dead, the only reason I thought I was still walking was because I wear a splint on that leg due to my foot drop.

Turns out I was wrong…

About four days ago my foot started returning. The temperature of my foot/ leg is as normal as the other one. I can move my foot again-it is  completely ‘normal’ in every sense! WOW

Apparently some people refer to it as an ‘MS Sock’ and it is a relapse not progression as I originally thought.. WOW I am gobsmacked-truly!

Until I get rid of this place.. The alexia rating has  jumped 100 K on the rating scale meaning that over 400 sick fucks from the UKS pig hole won’t let things go. Maybe I should capitalise on the sudden interest and turn this into a purely paid posting blog? I haven’t decided. The new place is going well, and I do have a couple of makes to plonk up so I’ll keep this brief.

I used my blue badge today- we went to Tescos and did a £120 shop, we did buy about a dozen of the Cars movie die casts for the boys., so that killed nearly £50 but what can you do?

Work is going well, still debating on whether or not to can it.. I’m pulling in nearly two grand a month so I don’t know. I only work in the evenings after the boys have gone to bed and really it is money for old rope considering..I read on Yahoo that a bloke from Kent was fined nearly £2,000 for making a mistake on his tax return!!  Now it doesn’t seem to be a waste of cash retaining that accountant after all!!

I really shouldn’t waste time on this place but it is too much fun!

So now you can all fuck off and look your spastic kidlets for five minutes.

I  have decided to reopen TC for the foreseeable future  (ten days at least) because there are two paid postings up here ,and for the past two years I have never had an opp rejected and I don’t intend to start now. I have already located to another domain, so this directory will be removed once I get the go ahead.

I have also decided to give up work and sit on the dole, I have never been on benefits in all my years, but there you go. I am disabled but apparently not disabled enough according to the wise old owls over at UKS, so to honour them I have decided to sit down and be more disabled in order to appease them. You wonderful tax payers will be paying for this ,and the other blogs once it happens, plus  all the stash that I will no doubt purchase,so I do hope that you enjoy it!

The drama continues! I won’t bother to give it a namecheck but the fat git left a wonderful comment here last night.Hilarious, the silly little bint left her IP address in the process and we all know what fun they can be! The comments are on moderation due to spam attacks and it will never be approved duckie.

I ordered the final four released books in the Black Dagger Brotherhood series, so hopefully they will be here by Thursday. I started Lover Eternal after breakfast cleanup (9.30am ish) and even with the daily routine interruptions I finished it this evening, which prompted me to go ahead and purchase the remaining books.

Nothing in the way of card making to show though. It is Easter break and there are two boys under five who need to be kept occupied, so I sort of knew that I wouldn’t get anything completed anyhow, no matter, I can’t find any Impress or Memento Inks in this place so even if I did have the time to card, I couldn’t .Curse me for using Promarkers anyways

Last night was a productive night in terms of paid blogging, I landed two different ops with a combined total of $225 dollars (around £147) for three hundred words and three link backs. I was well pleased last night when I was falling asleep- not bad for 20 minutes work! But just now when I opened the P75 mailbox I nearly shat my pants!! Sitting in there was (amongst the spam and FB updates) where three different invites to write on different topics!! Each wants over four thousand words each and the have to be submitted by Friday!! *wails*

It isn’t helping thatI’m feeling that my fingers have trebled in size and have been replaced by Cumberland Sausages! The compensation is very generous though and I will be accepting them no doubt.Anyway-onwards!